Tuesday, June 8, 2021

Weekend Update

 It was a long weekend, but that's because Friday was a long day. Max had an EEG on Friday morning that his doctor ordered as a routine check-up to see if his brainwaves have improved from three years ago. We were told to keep him up until midnight on Thursday night and then wake him up at 4am on Friday morning so that he would be exhausted for the EEG and fall asleep quickly. He made it to 11:30 on Thursday night and he got out of bed at 5:30 on Friday morning. We tried to get him up at 5am, but that was very hard. He was so tired! Needless to say, we were all very tired on Friday morning. 







His neurologist called me on Monday to let us know that there has been no change at all with his brainwaves and he expected improvement over three years for a kid with no disease and with a normal MRI. In fact the doctor said it was exactly the same reading from three years ago it's just signed by a different person. Instead of just switching up his medication, his neurologist is referring us to a colleague who only works with epileptic kids. He feels with a normal brain we should have improvement and the whole goal is to get Max to outgrow his seizures. His appointment with the new neurologist is next week on the 17th, so we were able to get him in quickly. I will keep you all updated on the progress.

On Saturday we went to see Stella's play in downtown Chandler. This is the first time we got to see her perform live in over a year, so it was a lot of fun. The play was God Speed and let's just say I really didn't understand the storyline and maybe we need to go to church? But, the kids did a great job. They all put a lot of effort into it and you could tell they were having fun. Following the play, we all went out to dinner in a bustling downtown Chandler. That was actually really nice to see people out again.





On Sunday we went for a four-mile bike ride even though it was pretty hot out. It was just nice to get out of the house and be active. We made a pit stop at Bahama Bucks to get a frozen treat before we headed back home.







After the bike ride, we cooled off in the pool. We even got Zoe in the pool with us. Sorry, but I didn't get any pics of Zoe in the pool with us.



I hope you all had a great weekend!

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